Saturday, June 30, 2007

I had a date last night!

Our church had a parents' night out for parents of special needs kids last night. They had pizza for the kids and they got to play games, go to the playground, watch movies...they had a great time. And hubby and I went to a real grown up restaurant with no children's menus or crayons, and had a nice relaxed dinner and never once had to tell the kids to stop kicking each other or worry about when the meltdown would start. It was heavenly. What a wonderful thing it was for them to do for us. I love my church family!

Oh and we had our first showing on our house today. It went well I think. Our agent said they want to look at it again. Also our next door neigbor said his wife's sister is looking for a house in the area(his brother lives next door to them on the other side), so that's a possibility. I'll be sad a little, this is where J has always lived and the only house Lindsey remembers, so it's a bit emotional...but I'm ready for a change.

Thursday, June 28, 2007

Recent FX news

For those who may have missed the recent news - pretty cool stuff!

Scientists eye an enzyme as target in fighting autism - Yahoo! News

and a well written blog by a retired MD discussing the recent news :
The X files: Autism’s fragile X syndrome


And tragically, it seems the Chris Benoit story has a link to FX as well. His 7 year old son, Daniel had FX. Our prayers are with that family.
Katie Clapp, founder and President of Fraxa(the FX research foundation) will appear on Inside Edition tonight to talk about Fragile X.

How sad that this is what it takes to get the attention of the media. Of course, we have to take the opportunity to get the word out and hopefully be able to help others with FX. We may never know if or how FX played into this tragedy, but we do know that having a child with special needs does create extra stress in many families. So we must continue to raise awareness and raise funds for research to find a viable treatment, and in the meantime, we just take it a day at a time and love our kids, and do the best we can.

Awesome story related to all this and a profile on the Heyman family:

Much love - L

Monday, June 25, 2007

Looks like it's gonna happen

So the house inspection went well, and we just spent the weekend trying to make our house presentable to try to sell it. I don't know how am I going to manage this with my little tornados (if you are ever looking for my kids, just follow the path of destruction).

I told Lindsey every toy she leaves out gets packed up and she'll see it again when we get to the new house.

So anyway - here's my favorite room in the new house - the screened back porch w/ ceiling fan so I can sit there in the shade and read a book and see the kids playing in the fenced backyard. I wish the furniture came with it...I need to go shopping for patio furniture soon before they sell it all - a lot of places will have it on clearance in the next few weeks I think.

Saturday, June 16, 2007

Tickled pink...

We went back today for a 2nd look at that house - That bathroom is severely pink! That is not a color I would ever agree to paint a room, but she likes it - lol.

Friday, June 15, 2007

4am...sleep? who needs sleep?

Seriously - 4am. That's what time Justin woke up yesterday and today - 4:00 on the dot. His little secret internal alarm goes off and he's done sleeping and done allowing me to sleep. He cries, yells, pulls the covers off of me and pokes me until I get up with him. And then he wants to watch "Cars" for the 4000th time.
I don't know what's up with the boy, but lately he seems to love being awake in the middle of the night. And he can't just play quietly, he either has to have a raging tantrum or watch 'Cars' - and I have to watch it with him. I'm averaging maybe 4 hrs of sleep over the last month and I'm worn to a frazzle. Still he's cute as pie and just when I'm at the end of my rope, he brings me back with a hug and a kiss and all the cuteness that is Justin.

On another subject entirely, we are still house hunting. We've also been talking about building a house and are working on the floor plan with the architect. But, a house came up for sale this week that we like a lot. It's bigger than we need, but it's really pretty. And it has a hot pink bathroom for Lindsey. Think of a flourescent hot pink highlighter - that's the color of the bathroom. Gives me a headache to look at it, but she would L-O-V-E it. We will probably go look at it again tomorrow with the kids.